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    • Designing inclusive studies >
      • Legal frameworks
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    • Communication and capacity
    • Consent and consultation
    • Research conduct
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  • INCLUDE Impaired Capacity to Consent Framework
  • CONSULT SWAT
  • Home
  • Resources
    • Designing inclusive studies >
      • Legal frameworks
      • Outcome measures
      • Participatory involvement
    • Research ethics
    • Communication and capacity
    • Consent and consultation
    • Research conduct
  • Training
  • Publications
  • Contact
  • INCLUDE Impaired Capacity to Consent Framework
  • CONSULT SWAT
Capacity consent research
  • Home
  • Resources
    • Designing inclusive studies >
      • Legal frameworks
      • Outcome measures
      • Participatory involvement
    • Research ethics
    • Communication and capacity
    • Consent and consultation
    • Research conduct
  • Training
  • Publications
  • Contact
  • INCLUDE Impaired Capacity to Consent Framework
  • CONSULT SWAT

CAPACITY AND
CONSENT TO
RESEARCH

RESOURCES
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About this site

This website brings together a range of resources to support researchers conducting research with adults who have impaired capacity to consent and health and social care professionals who provide care for people with impaired capacity. It also contains tools such as the NIHR INCLUDE Impaired Capacity to Consent Framework.

The resources are intended to cover all populations who may have impaired capacity, with a number of specifically tailored resources for particular populations.

​The website has been developed as part of the CONSULT project.
 
more about CONSULT

How to access the resources

To access the resources directly, click on the images below or use the navigation panels at the top left of the page
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Resources

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Resources to help you to design and conduct research with adults with impaired capacity, including some commonly used terms
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Training

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Links to training and educational resources available for researchers
​and healthcare professionals
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Publications

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Recently published papers on topics related to research with adults who lack capacity to consent.

Research Pathway

Research needs to be designed to be inclusive of under-served groups, such as adults with impaired capacity to consent, at all stages of the lifecycle of a study. This includes from the initial research idea through to dissemination and implementation of the findings. 

Please download the pathway to see our resources to support the inclusion of adults with impaired capacity in research organised by stages of the research pathway, with hyperlinks to the relevant website pages.
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Research Projects

Ongoing and completed projects linked to CONSULT that explore aspects of research involving adults lacking capacity to consent.

Ongoing studies

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CONCORD 
​Study

​Development of CONCORD scale - a combined scale for measuring the quality of proxy informed consent decisions
RESULTS NOW AVAILABLE
LEARN MORE
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​CONSULT
​SWAT
​A 'Study Within A Trial' to evaluate a decision aid booklet to support proxy consent decisions about trial participation
RECRUITING HOST TRIALS
Learn More
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​CONSULT-
​ADVANCE

Exploring stakeholders' views about the acceptability and feasibility of Advance Research Planning
*SURVEY NOW OPEN*
LEARN MORE

Completed studies

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DECISION
​Study

​A qualitative study exploring family members' decision-making about research as consultees and legal representatives
Learn more
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DECISION 2 Study

A study to explore families' understanding of a novel decision support tool for consultees and legal representatives
Learn more
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COnSiDER (COS)

Development of a core outcome set for interventions to enhance proxy decisions about research participation
Learn more
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CONSULT-ENABLE

​Interview study to explore the barriers to conducting research with adults lacking capacity
Learn more

About us

CONSULT is part of an NIHR Advanced Fellowship project funded by the Welsh Government through Health and Care Research Wales. ​It is led by Dr Victoria Shepherd from the Centre for Trials Research, Cardiff University, UK.
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​Resources are being updated as the website develops over time. Please let us know if there are any resources or links to training or publications that we can share.

​Please also contact us if you have any comments or feedback about the website.
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Contact us
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The Centre for Trials Research at Cardiff University is funded by Welsh Government through Health and Care Research Wales, and Cancer Research UK .
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