• Home
  • Resources
    • Designing inclusive studies >
      • Legal frameworks
      • Outcome measures
      • Participatory involvement
    • Research ethics
    • Communication and capacity
    • Consent and consultation
    • Research conduct
  • CONSULT Training
  • Decision support
  • INCLUDE Impaired Capacity to Consent Framework
  • OPTIMISE
  • Advance research planning
  • Palliative Care
  • Publications
  • Contact
  • Home
  • Resources
    • Designing inclusive studies >
      • Legal frameworks
      • Outcome measures
      • Participatory involvement
    • Research ethics
    • Communication and capacity
    • Consent and consultation
    • Research conduct
  • CONSULT Training
  • Decision support
  • INCLUDE Impaired Capacity to Consent Framework
  • OPTIMISE
  • Advance research planning
  • Palliative Care
  • Publications
  • Contact
Capacity consent research
  • Home
  • Resources
    • Designing inclusive studies >
      • Legal frameworks
      • Outcome measures
      • Participatory involvement
    • Research ethics
    • Communication and capacity
    • Consent and consultation
    • Research conduct
  • CONSULT Training
  • Decision support
  • INCLUDE Impaired Capacity to Consent Framework
  • OPTIMISE
  • Advance research planning
  • Palliative Care
  • Publications
  • Contact

CAPACITY AND
CONSENT TO
RESEARCH

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About this website

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This website brings together a range of resources to support researchers conducting research involving adults with impaired capacity to consent. It also contains tools such as the NIHR INCLUDE Impaired Capacity to Consent Framework and CONSULT training on how to design and conduct trials involving adults with impaired capacity to consent, OPTIMISE recommendations for inclusive consent processes, and information and decision support for families acting as a consultee or legal representative.

The resources are intended to be relevant for all populations/contexts where capacity to consent may be affected, with a number of resources for particular populations. ​The website has been developed as part of the CONSULT project. See links below for an infographic summary and a report describing the project's activities and key findings.
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CONSULT INITIAL PROJECT OUTLINE
CONSULT summary - infographic
CONSULT SUMMARY - FULL REPORT

How to access the resources

To access the resources directly, click on the images below or use the navigation panels at the top left of the page
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Resources

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Resources to help you to design and conduct research with adults with impaired capacity, including some commonly used terms
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Training

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Links to training and educational resources available for researchers
​and healthcare professionals
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Publications

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Recently published papers on topics related to research with adults who lack capacity to consent.

Research Pathway

Research needs to be designed to be inclusive of under-served groups, such as adults with impaired capacity to consent, at all stages of the lifecycle of a study. This includes from the initial research idea through to dissemination and implementation of the findings. 

Please download the pathway to see our resources to support the inclusion of adults with impaired capacity in research organised by stages of the research pathway, with hyperlinks to the relevant website pages.
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About us

CONSULT is part of an NIHR Advanced Fellowship project funded by the Welsh Government through Health and Care Research Wales. ​It is led by Dr Victoria Shepherd from the Centre for Trials Research, Cardiff University, UK. ​Resources are updated over time. Please let us know if there are any resources or publications that we can share. ​Please also contact us if you have any comments or feedback about the website.

Contact us
The Centre for Trials Research at Cardiff University is funded by Welsh Government through Health and Care Research Wales, and Cancer Research UK .
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VISIT Centre for Trials Research website
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