CAPACITY AND
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About this siteThis website brings together a range of resources to support researchers conducting research with adults who have impaired capacity to consent and health and social care professionals who provide care for people with impaired capacity. It also contains tools such as the NIHR INCLUDE Impaired Capacity to Consent Framework and CONSULT training on how to design and conduct trials involving adults with impaired capacity to consent.
The resources are intended to cover all populations who may have impaired capacity, with a number of specifically tailored resources for particular populations. The website has been developed as part of the CONSULT project. |
How to access the resources
To access the resources directly, click on the images below or use the navigation panels at the top left of the page
Resources
Resources to help you to design and conduct research with adults with impaired capacity, including some commonly used terms
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Training
Links to training and educational resources available for researchers
and healthcare professionals |
Publications
Recently published papers on topics related to research with adults who lack capacity to consent.
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Research PathwayResearch needs to be designed to be inclusive of under-served groups, such as adults with impaired capacity to consent, at all stages of the lifecycle of a study. This includes from the initial research idea through to dissemination and implementation of the findings.
Please download the pathway to see our resources to support the inclusion of adults with impaired capacity in research organised by stages of the research pathway, with hyperlinks to the relevant website pages. 
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Research Projects
Ongoing and completed projects linked to CONSULT that explore aspects of research involving adults lacking capacity to consent.
Completed and ongoing studies
CONCORD
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A 'Study Within A Trial' to evaluate a decision aid booklet to support proxy consent decisions about trial participation
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CONSULT-
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Stakeholder-informed training for researchers on designing and conducting trials involving adults with impaired capacity
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Completed studies
DECISION
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DECISION 2 StudyA study to explore families' understanding of a novel decision support tool for consultees and legal representatives
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COnSiDER (COS)Development of a core outcome set for interventions to enhance proxy decisions about research participation
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CONSULT-ENABLEInterview study to explore the barriers to conducting research with adults lacking capacity
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About us
CONSULT is part of an NIHR Advanced Fellowship project funded by the Welsh Government through Health and Care Research Wales. It is led by Dr Victoria Shepherd from the Centre for Trials Research, Cardiff University, UK.
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